WearyBonnie
3TomatoesShort@disabled.social
<p>Chronically ill with <a href="https://disabled.social/tags/POTS" class="mention hashtag" rel="tag">#<span>POTS</span></a>, living on unceded Whadjuk Noongar land - Boorloo/Perth, Western Australia. </p><p>Please don't give me unsolicited advice. If you desperately think your information may be useful, just ask first? </p><p>Quietly obsessed with the musical Tanz der Vampire. Occasional cross stitcher. Not complicit in the spread of preventable disease.</p><p>~* Transphobic 'feminism' is garbage *~</p><p>Economies are supposed to serve people, people are not supposed to serve economies π€</p>
Posts
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I wonder if I should make a hashtag for my stent adventures? It would make it easier for me to put it all in one place, and maybe it might be helpful for anyone else with POTS and vascular compression who stumbles across it? I don't know how the story will end, but that's life π€·π» I could be a cautionary tale or a medical science trailblazer π€ͺ Maybe #BonniesStentForPOTS ?
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Jacinda Ardernβs Matariki Fund gives $2 million to development of new UTI vaccine > Itβs a debilitating condition that affects millions worldwide and disproportionately affects women and girls, but Australian researchers may be one step closer to preventing and treating UTIs, thanks to a philanthropic grant administered by former New Zealand prime minister Jacinda Ardern. https://archive.li/8c8kv
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#3GoodThings today. 1. Very good (and accidentally hilarious) meeting with youngest's teacher π 2. Instead of stressing about the expense for ages, I just ordered myself new sandals because I need new sandals π‘ 3. Still feeling super excited about eldest's new school for next year π
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#3GoodThings today. 1. My kiddo had orientation at his new school and I couldn't be more pleased at how well it seems to suit him, and how awesome all the other kids and the staff seem to be :autism: 2. I think my youngest's growth spurt may be calming down?? He only had one dinner today! π 3. I got to pat a very soft and very very good dog πβπ¦Ί
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#3GoodThings today. 1. Both kiddos made it to school π 2. I'm slowly starting to catch back up with the housework after an extra-difficult patch π§Ή 3. Feeling less stressed about the logistics of travelling for a medical procedure next year π«
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It's weird seeing discourse on whether or not a thing is "difficult", when it's a thing that used to be easy for you and then became hard due to brain fog. I think it's a very reliable way to learn that there is no such thing as easy or difficult in an objective kind of way, only "how easy/difficult is this for this one person at this one time in this one particular situation?"
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#3GoodThings today. 1. The fact that I am finding things very upsetting is at least a good sign that I am not depressed: my thoughts and feelings have not slipped away and left only white noise in my head π€·π» 2. Having access to comforting music and wildlife live feeds and relaxing tv shows etc πΊ 3. My calendar for next year arrived, and the photo for March is so calming that I'm going to use that landscape for my meditation practice π§π»
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Music therapy for dementia: MDPI study reveals music can rewire the brain to improve cognitive function https://archive.li/puO0J
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#3GoodThings today. 1. Bedtime π₯± 2. Doctor's appointment went pretty well βοΈ 3. No appointments tomorrow ππ»
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#3GoodThings today. 1. Bedtime ππ» 2. The nice feeling of having showered, even if I would have vastly preferred to rest πΏ 3. Kiddo liked their birthday presents more than I expected π
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#3GoodThings today. 1. Kiddos enjoying their birthday presents π 2. New Geoff Castellucci Christmas song ποΈ 3. Found a big LED candle just like I was looking for, and it was 50% off! π―οΈ
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#3GoodThings today. 1. Making it down to school to see the display kiddo's class was putting on π« 2. My new Christmas decoration (a giant lantern) arrived in one piece and I like it very much π―οΈ 3. Being more well than yesterday π
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Remember when using + in a search engine actually did something? π₯²
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#3GoodThings today. 1. Filed one more doctor in my mental file of Excellent Doctors βοΈ 2. A package arrived: a gift of books my bestie ordered for me just because she thought they would bring me joy π 3. Having comfortable and secure housing to keep me safe, no matter how much I am struggling emotionally π‘
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#3GoodThings today. 1. Giving myself grace for not being perfect π€·π» 2. Making good progress tidying up the family room π§Ή 3. Remembering how my bird friend used to have little naps on my hand π¦ββ¬
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#3GoodThings today. 1. Feeling grateful for all the loving and supportive relationships in my life π 2. Feeling grateful for housing and financial security π‘ 3. Feeling grateful for the truly very, very good parts of our healthcare system here βοΈ
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Imagine being rich enough to buy a bunch of properties where you could build supported housing networks for all your chronically ill and disabled pals π
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#3GoodThings today. 1. Cracking up laughing in the car when the eldest (during a game of eye spy) deadpanned that all the buildings around us should be called 'builts', since they were finished π€ͺ 2. Turning my calendar to November, so now I can see that I finally get a break from appointments in about 3 weeks ποΈ 3. Getting through a very long and exhausting day ππ»
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#3GoodThings today. 1. Brown honeyeaters in the garden π¦ββ¬ 2. Not being empty-handed for the first trick or treaters in about 10 years π 3. Watching a movie with my kiddo πΏ
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#3GoodThings today. 1. Rats. Just thinking about rats π 2. Saw some pretty butterflies π¦ 3. Just having a boring day with only minor dramas π
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#3GoodThings today. 1. Saw 2 tiny little brown honeyeaters in the garden, for the first time since last summer π¦ββ¬ 2. Cooler weather forecast for tomorrow βοΈ 3. A delicious dinner, even if it was not a good decision for my symptoms π₯²
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First Nations urge partnership for disaster resilience | PerthNow https://www.perthnow.com.au/news/disaster-and-emergency/first-nations-urge-partnership-for-disaster-resilience-c-23089952 > Indigenous organisations are faced with "chronic underinvestment" and lack of partnership when natural disaster strikes, a report has found.
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#3GoodThings today. 1. Youngest's NDIS application is officially submitted ποΈ 2. Did some very pleasant garden pottering π‘ 3. Saw a lovely goshawk flying through the garden and stopping next door π¦
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Woo I happened to be outside with the youngest when a goshawk flew from somewhere quite close to us (we didn't see it until it was moving) into the neighbours' big tree π
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#3GoodThings today. 1. Got the first NDIS meeting (for the youngest) out of the way - one step closer to a bit of financial support ποΈ 2. My dangerous tree has been removed, so I don't have to live in fear of it doing someone in πͺ 3. I did some pruning in the garden and some work to improve my mini pond π
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Australia's indoor air pollution crisis: Doctors, scientists and parents push for urgent national standards in schools and hospitals > Polluted air in schools, hospitals, train stations and workplaces has become the leading environmental cause of preventable illness and premature death, doctors and scientists have warned. https://archive.li/ufUHh
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#3GoodThings today. 1. Appointment with a new healthcare provider went pretty well βοΈ 2. The clouds looked amazing today βοΈ 3. Some lovely rain for the garden π§οΈ
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#3GoodThings today. 1. Enjoying having clean floors and a clean bathroom π§½ 2. Starting one of those one-off jobs that only has to be done once and then housework is a little easier forever after πͺπ» 3. My kiddos have had a good and cheerful day π
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Interesting story on peanut farming on Landline this week. I buy peanut butter made from Australian peanuts for other reasons, but it's nice to learn that that's also a really good way to avoid exposure to a toxin that sometimes sneaks in on imported peanuts (apparently every batch of peanuts harvested here is tested for it).
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For silly reasons I just happened to search for stilts on the Bunnings website, and now I've got the giggles imagining myself wearing tradie stilts around the house so I can reach all the top cupboards etc π